{"id":1018,"date":"2021-02-28T11:37:21","date_gmt":"2021-02-28T16:37:21","guid":{"rendered":"https:\/\/ecogene21.org\/nouvelle\/tenir-bon-en-attendant-la-strategie-quebecoise-sur-les-maladies-rares\/"},"modified":"2025-10-22T16:29:41","modified_gmt":"2025-10-22T20:29:41","slug":"tenir-bon-en-attendant-la-strategie-quebecoise-sur-les-maladies-rares","status":"publish","type":"nouvelle","link":"https:\/\/ecogene21.org\/en\/news\/tenir-bon-en-attendant-la-strategie-quebecoise-sur-les-maladies-rares\/","title":{"rendered":"Holding out for Quebec’s rare disease strategy"},"content":{"rendered":"

For people affected by rare diseases, the current challenges have only exacerbated their extreme vulnerability and delayed their access to diagnosis, healthcare and treatment. Many patients have found themselves more isolated than ever, with no resources or support.<\/p>\n

In Quebec, around 500,000 people are affected by a rare disease. There are more than 7,000 rare diseases worldwide, and in theory, any one of them could affect Quebecers.<\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

For people affected by rare diseases, the current challenges have only exacerbated their extreme vulnerability and delayed their access to diagnosis, healthcare and treatment. Many patients have found themselves more isolated than ever, with no resources or support. In Quebec, around 500,000 people are affected by a rare disease. There are more than 7,000 rare […]<\/p>\n","protected":false},"featured_media":0,"template":"","meta":{"_acf_changed":false,"inline_featured_image":false},"categorie":[28],"class_list":["post-1018","nouvelle","type-nouvelle","status-publish","hentry","categorie-news"],"acf":[],"yoast_head":"\nHolding out for Quebec's rare disease strategy - ECOGENE-21<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/ecogene21.org\/en\/news\/tenir-bon-en-attendant-la-strategie-quebecoise-sur-les-maladies-rares\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Holding out for Quebec's rare disease strategy - ECOGENE-21\" \/>\n<meta property=\"og:description\" content=\"For people affected by rare diseases, the current challenges have only exacerbated their extreme vulnerability and delayed their access to diagnosis, healthcare and treatment. Many patients have found themselves more isolated than ever, with no resources or support. In Quebec, around 500,000 people are affected by a rare disease. 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